listen to ‘Exercising with Crohn’s Disease… ’ on audioBoom Exercise and Inflammatory Bowel Disease (IBD) are rarely mentioned in the same sentence. This worries me because working out, exercising or becoming a bit more active, is of tremendous benefit for almost anyone who has IBD. The problem – in my humble opinion – […]
Tag Archives: Ulcerative Colitis
A 504 Plan Experience
The last blog I wrote for you was about the basics of a 504 plan. Today’s blog comes from the heart. It isn’t your happy, feel-good story either. When I think about it, I get mad all over again. You see, getting my son’s 504 was not all that easy. At the end of my […]
We Are All In This Together
Wanting to belong and to be accepted is a natural desire for all people. It comes hand-in-hand with being ill too. When we are sick, we want to forget it usually and have time where we are just with our friends again in a normal environment and life. So go out. Do the exact things […]
Crohnic Holidays…
listen to ‘Crohnic Holidays…’ on audioBoom This blog post is inspired by my impending couple of weeks holiday. Well maybe “holiday” is kind of overstating things. In reality, I simply have some time off from work. Like most people I will doubtless spend the first few days trying to switch my brain off from work […]
SPECIAL – IBDSocialCircle at DDW14
In may, I was invited by Janssen Biotech, a Johnson and Johnson company, to attend Digestive Disease Week 2014 in Chicago and be a part of the IBDSocialCircle. The IBD Social Circle comprises of the leading IBD advocates Marisa Lauren Troy of JournalingIBD.org, Sara Ringer of InflamedandUntamed.com, Megan Starshak and Andrea Meyers of The Great […]
IBD, Your Child, and School
One of the first things that I was asked when I started attending support group after my son was diagnosed was if I had gotten him a 504. Of course being new to this “my child has a chronic illness” thing, I wondered what they were talking about. It didn’t take me long to figure […]
Too much thinking…
listen to ‘Thinking about Crohn’s Disease…’ on Audioboo I have previously mentioned that I try hard not to think about things too much. This is for a number of reasons, not least of which is that I have a very small brain and too much thinking makes it sore! However, whilst doing some maintenance on […]
Whoa… Should I really be talking about IBD?
At a recent support group meeting I listened to a few people talk about how their child or they themselves don’t want to talk about their IBD with anyone. They don’t want anyone to know. Hearing them relate their feelings and recalling others expressing their wishes to keep quiet about what they are going through, made me […]
Episode 13 – IBD Public Awareness
After a small summer hiatus, The IBD Round Table is BACK for Episode 13. Ryan Stevens will tell us about his AMAZING swim across Lake Erie to raise public awareness for Inflammatory Bowel Disease… We’ll discuss the ALS Ice Bucket Challenge and if IBD needs a similar campaign… And the new CCFA PSA advertisement, is […]
IBD Patients and Caregivers Have Strong Emotions
I want to talk about the two most powerful emotions that I believe go alongside a life with Crohn’s Disease or Ulcerative Colitis. As most of you already know, inflammatory bowel disease is a family disease. Most chronic illnesses are which makes them that much harder to live with. Everything that happens to patients impacts […]