Almost a year ago, Marisa Lauren Troy and I started a new series on The Crohn’s Colitis Effect YouTube channel called The Realities of IBD. One of the videos Marisa created was Traveling with IBD and an Ostomy. Since technically we are in Spring, heading into the Summer, I thought it might be a good […]
In May of 2015, during Digestive Disease Week ( DDW ), I had the honor of hosting the webcast Preparing for Procedures and Surgeries for the IBD Social Circle. The webcast panelist included Amber J. Tresca of AboutIBD.com, Dr. Megan Costedio of the Cleveland Clinic, Ryan Stevens of CrohnsGuy.com, Dr. Muhammad Ali of The University of […]
They say IBD is just a bathroom disease….. Well, you and I know different! It’s not a bathroom disease. In fact, I’d argue that the bathroom was only a small part of the disease. What most of the world doesn’t understand about Crohns Disease and Ulcerative Colitis is that needing to be fed by TPN ( […]
I am pleased and proud to announce a new IBD video series, The Realities of IBD Together with Marisa Lauren Troy of JournalingIBD.org, The Realities of IBD will talk about living with Inflammatory Bowel Disease ( Crohn’s Disease and Ulcerative Colitis ) on a daily basis. Marisa, who has been living with IBD ( Ulcerative […]
This morning, I posed a question to my Twitter followers… Outside of the bathroom, what is the biggest annoyance #IBD brings to your life on a daily basis? The reason I asked Outside of the bathroom is because when most people hear IBD they automatically associate it with the bathroom and being on the toilet. Those […]
Yesterday, Domenic has his infusion of Remicade. For those that don’t know, Domenic gets a monthly infusion for his Crohns Disease. We’ve been doing this for almost three years now. Remicade has made a huge difference in Domenic’s life. It has greatly improved his quality of life and, along with another medication called Methotrexate, has […]
IBD has me bitter, angry, and very mad right now! My son has spent seven of his eight years of life suffering with pain, nausea, and missing important milestones due to being stuck in the hospital. A very good friend of mine just got done spending two weeks in the hospital thanks to IBD and […]
When I found out I was becoming a Father for the first time, I spent almost the entire nine months thinking about what life was going to be like for myself and my son-to-be. I spent hours dreaming about feeding him, changing him, watching him take his first steps, and what life would be like […]
This weekend was unlike any other weekend I’ve ever had before. It was a weekend filled with inspiration, hope, and memories that I will never forget. I took part in the IBD event, Get Your Guts In Gear (GYGIG) which took place in upstate New York. I arrived Friday, June 7th knowing a few people. […]
I’ve been asked several times what made me decide to become an IBD advocate. It’s a story I don’t think I could ever forget. It was Christmas 2011 and Domenic was having one of the worst flares of his life. We had already spent over fifty days in the hospital that year, including Halloween and […]
