In May of 2015, during Digestive Disease Week ( DDW ), I had the honor of hosting the webcast Preparing for Procedures and Surgeries for the IBD Social Circle. The webcast panelist included Amber J. Tresca of AboutIBD.com, Dr. Megan Costedio of the Cleveland Clinic, Ryan Stevens of CrohnsGuy.com, Dr. Muhammad Ali of The University of […]
Today is Tuesday, May 19th 2015 and it’s World IBD Day! What exactly does that mean? No, it’s not a day to celebrate Inflammatory Bowel Disease. Honestly, outside of all the great people that I now consider to be part of my IBD family I can’t think of another reason to celebrate IBD. It’s a […]
I am pleased and proud to announce a new IBD video series, The Realities of IBD Together with Marisa Lauren Troy of JournalingIBD.org, The Realities of IBD will talk about living with Inflammatory Bowel Disease ( Crohn’s Disease and Ulcerative Colitis ) on a daily basis. Marisa, who has been living with IBD ( Ulcerative […]
Times change and people change with it. Living with Crohn’s Disease can force you to re-evaluate a great many things in life. It can put you outside the comfort zone of the general population who consider talking about Inflammatory Bowel Disease as something to be avoided. Over time, I have discovered that whilst I still […]
listen to ‘Looking back – looking forward…’ on audioBoom As this is my first blog post of 2015, it seemed only right to have a quick look back at 2014 and reflect on what’s been happening in the wonderful world of Inflammatory Bowel Disease (IBD)… The one thing that sticks out was my feeling that […]
One of the first things that I was asked when I started attending support group after my son was diagnosed was if I had gotten him a 504. Of course being new to this “my child has a chronic illness” thing, I wondered what they were talking about. It didn’t take me long to figure […]
At a recent support group meeting I listened to a few people talk about how their child or they themselves don’t want to talk about their IBD with anyone. They don’t want anyone to know. Hearing them relate their feelings and recalling others expressing their wishes to keep quiet about what they are going through, made me […]
This morning, I posed a question to my Twitter followers… Outside of the bathroom, what is the biggest annoyance #IBD brings to your life on a daily basis? The reason I asked Outside of the bathroom is because when most people hear IBD they automatically associate it with the bathroom and being on the toilet. Those […]
The other day I learned that Healthline chose The Crohn’s Colitis Effect as The Best Crohn’s Disease Blogs of 2013! To say that I was shocked and stunned would be an understatement! I started The Crohn’s Colitis Effect a few years ago after some friends encouraged me to speak out about everything that was happening […]
I’ve been asked several times what made me decide to become an IBD advocate. It’s a story I don’t think I could ever forget. It was Christmas 2011 and Domenic was having one of the worst flares of his life. We had already spent over fifty days in the hospital that year, including Halloween and […]
